Our mission is to provide support to families caring for a child with Schinzel-Giedion Syndrome, to raise awareness of SGS, and to facilitate and support medical research that will help us find better treatments to improve the quality and length of life of children living with SGS.

Our vision is for a future when all children with Schinzel-Giedion Syndrome will receive a rapid genetic diagnosis and have access to effective medical therapies to ensure they live longer, healthier, and happier lives.